Author Archives: Heather Lynn
While the HBOT (Hyperbaric Oxygen Therapy) may not be a cure all, I think it would be safer than all of the prescription drugs that doctors try to put us on.
Hey CRPS/RSD Fighters!
I want to try something, but I really need your help, in order for this to be successful.
My ultimate goal here, is to spread awareness about CRPS and share what it's like to have it.
What do I need from you?
-Below are a few questions. It would be so helpful if you answered one of them for me!
International Trigeminal Neuralgia Awareness Day
October 7, 2013 is the first-ever Trigeminal Neuralgia Awareness Day!
Be sure to pop over to the TN Awareness Day website, too.
Trigeminal Neuralgia is also known as "Suicide Disease." Although rare (there's an estimate of 5-8 million people affected, worldwide; 'though, since there's no official database and many go undiagnosed, that could be much higher, I'd imagine) it causes…
Have you ever thought about participating in a clinical trial? I've never done it myself, but I've always wanted to. It's a way to talk to people who are studying your condition, receive free medical examinations/testing, free medication, and possibly earn some money. On top of all that, you'll be helping to further our current understanding of fibromyalgia.
I was just Googling random things today, like I always do, when I came upon these sites which list research studies in need of participants.
Jake Peavy Pledges to Donate $500 to Jimmy Fund for Each Strikeout Thrown by Red Sox Pitchers in Game 4
The Red Sox turn to Jake Peavy on Wednesday night, looking to increase their lead in the ALCS, but the right-hander is making moves off the field as well during Game 4.
According to the Jimmy Fund, for each strikeout a Red Sox pitcher throws against the Tigers, Peavy will be donating $500 to the organization for cancer research. Peavy's great gesture is a tribute to his late grandmother
(CBS) -- The Busted Foundation started in Los Angeles in 2007.
Now, it's bringing its mission to Chicago at a special event at Slugger's in Wrigleyville this Sunday.
The first annual "Batting for Boobies" will be held at Slugger's on Sunday from 2 p.m. to 6 p.m.
"This is one of the few breast cancer charities that actually focus on supplying direct financial aid to women.
Here are some quotes that I found, In hopes that it may help those of you going through some hard times.
And to those of you who are in the large family of CRPS/RSD fighters...
Never give up hope <3
There are so many others that I just love!
Many of us have a special quote or saying, that helps us get by....
Hey Ribbon Rockers!
There is still a little bit of August left! I think it would be great to hear from people, regarding, “What’s your Legacy Month”…..
What do you want your legacy to be?
What do you want people to remember you by?
I’d love to here your answers! Please comment below!
PS: I want my legacy to include helping and inspiring others to help change lives. Spreading awareness about diseases/ conditions/etc. that people rarely hear about.
*Knowledge is power. It’s so powerful, it could save your life.* Early detection and prevention for anything involving your body is key!
Help me spread knowledge about a debilitating condition called CRPS/RSD. It’s not rare… It’s not new. Alone, it affects 52% of the military who come back from overseas. But anyone can get it! I have had it for 18 months now…
How could something so horrible, that effects a lot of people, not have anything close to a cure??? Even worse! How come there are so many doctors, nurses, hospitals, Etc. who have never even heard about CRPS??
….. It doesn’t make sense to me.
I have a blog about CRPS, and living with this condition, otherwise known as the “suicide disease”
http://www.hopeforyourcause.org …. I hope you check it out!
So...I was searching the Internet to get some information on a doctor that I am supposed to see at the end of the month,and I found an awesome site!
*(Side note: whether you have a health condition or not,ALWAYS google a new doctor you are going to go see! 9 times out of 10, there will be reviews from their patients on there.
These are some coping skills that I am definitely going to try! Chronic Pain coping skills!
I'm so happy to say that there is another blogger on here to share her experiences, rants, info regarding her life with CRPS,Etc!
On the right side of the page, you will see a menu with "Heather Lynn", " CRPS fighter Jen", etc...
To read her updates/posts... You'll just click on her name, and BOOM! It will be there!
Yes! I would love to!
I hope you don't mind that I'm sharing this comment in a post. I saw you write "Hi Everyone", so I'm assuming this is okay :-)
*Those of you with CRPS/RSD, please read this message below!*
If you'd like more information about Maria's story book, and/or want to participate in it, Please EMAIL HER!
“A true friend is someone who sees the pain in your eyes while everyone else believes the smile on your face.”
- (A quote from the post provided below)
Please read the rest of this post by clicking this link:
**The Princess in the Tower has become one of my favorite blogs. Each post is written so well, to the point where it feels like the words are literally taken out of my mouth.**
I get so many people asking me what CRPS is, as well as what HBOT is. Instead of me requesting to google it (*It's not very easy to explain-but not difficult to understand*) I figured I'd knock 2 birds with one stone! :-D
This post has amazing information regarding HBOT & CRPS/RSD!
After reading this,you should understand why I've made it my mission to raise the money to receive HBOT, by hosting…
Help Support the Homeless & Needy
Crocheters, Knitters & Sewers
Recently, I began looking for Charities to post on the Google+ Community. I found several National Organizations, which have large volunteer bases. Then, I discovered an organization not included in the National database. I found Emily’s Hats for Hope Initiative, based in New Jersey!
Emily is a real person.